On November 10, 2006, our son Luca was born with a lethal form of skeletal dysplasia called short rib-polydactyly syndrome. When Luca was first diagnosed, we searched tirelessly for a way to save him. We found none. As a result, he died in our arms 90 minutes after his birth. In his memory, we started The Luca John Foundation, which is dedicated to curing for skeletal dysplasia and supporting grieving families in need.