What We Do Who We Are.

Founder's Letter

It has been nearly ten years since the founding of The Luca John Foundation. We set out to heal hearts and provide hope, but we didn’t know how much it would give us in return. Looking ahead, we have set some milestone goals for the Luca John Foundation.

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Our Story, Our Mission

On November 10, 2006, our son Luca was born with a lethal form of skeletal dysplasia called short rib-polydactyly syndrome. When Luca was first diagnosed, we searched tirelessly for a way to save him. We found none. As a result, he died in our arms 90 minutes after his birth. In his memory, we started The Luca John Foundation, which is dedicated to curing for skeletal dysplasia and supporting grieving families in need.

Learn More About Skeletal Dysplasia


As a parent you try to protect your child from every harm, but when you cannot protect your own, you try to protect others.

The mission of The Luca John Foundation reflects this sentiment in its two-pronged approach:

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Bereavement Assistance

Providing financial assistance for funeral expenses to families who have lost an infant child at 12 months or younger, or a stillbirth.

Skeletal Dysplasia Research

Awarding grants to medical communities increasing the survivability and quality of life of children diagnosed with all forms of dysplasia.


We made a promise to Luca that he would help others and people would know him. Now, almost nine years later, the Foundation continues to honor that oath with each life celebrated and every dollar raised.

Families in more than 30 states have received bereavement assistance

in Financial Assistance awarded to bereaved families.

Two years running. Awarded by GreatNonprofits, based on positive online reviews.

Show Your Support

The Luca John Foundation is a 100% volunteer-run organization.
Each dollar raised goes towards funding life-saving research, and proving help and hope for bereaved families in need.

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