On November 10, 2006, our son Luca was born with a lethal form of skeletal dysplasia called short rib-polydactyly syndrome. When Luca was first diagnosed, we searched tirelessly for a way to save him. We found none. As a result, he died in our arms 90 minutes after his birth. In his memory, we started The Luca John Foundation, which is dedicated to curing for skeletal dysplasia and supporting grieving families in need.


As a parent you try to protect your child from every harm, but when you cannot protect your own, you try to protect others.

The mission of The Luca John Foundation reflects this sentiment in its two-pronged approach funeral expense support and infant loss emotional support.

Bereavement Assistance

Providing financial assistance for funeral expenses to families who have lost an infant child at 12 months or younger, or a stillbirth.

The Luca John Foundation Impact


The Luca John Foundation – No family should be alone in times of unimaginable grief.


We help families who have lost an infant child (12 months or younger), by alleviating their emotional and financial suffering through providing support and compassion as well as assistance with funeral/burial expenses.

Volunteer Purpose

As volunteers for The Luca John Foundation, we fully subscribe to the vision and mission of this caring  organization. We are here to help families who suffer due to the loss of their child. This gives us meaning and purpose and allows us to volunteer from the heart. We believe in the power of giving love and support to families in need.


We made a promise to Luca that he would help others and people would know him. Now, almost fifteen years later, the Foundation continues to honor that oath with each life celebrated and every dollar raised.


Families in more than 30 states have received bereavement assistance in Financial Assistance awarded to bereaved families.

Show your Support

The Luca John Foundation is a 100% volunteer-run organization.
Each dollar raised goes towards funding life-saving research, and proving help and hope for bereaved families in need.